Where Your Money Goes
The Walk for Children with Apraxia has been critical to expanding and continuing programs to benefit children with apraxia and their families! Below are some of the ways in which Walk for Apraxia funds are used.
Ongoing funding for the Apraxia Research
CASANA is the only dedicated source of funding for initial apraxia research. Very little research exists on appropriate and best treatment for children with apraxia of speech, however, through CASANA-funded research efforts more is becoming known each year. Some examples of how CASANA is aiding research are:
- Funding for apraxia pilot research projects that have led to publications in major professional journals and in which pilot data collected has provided researchers with the opportunity to receive larger grants from the NIDCD branch of the National Institutes of Health.
- The creation and maintenance of the Apraxia Child Research Registry, a one-of-a-kind “bottoms up” approach to research. Parents submit comprehensive information about their child so that researchers will be able to seek participants for qualified research projects that will help us further understand the causes and nature of CAS. As interest in CAS research heightens based on the growing availability of advanced genetic and imaging technology, CASANA will be on the forefront of research support.
- Meetings among the top international researchers are crucial in order to facilitate collaborations and larger studies on CAS. CASANA, through walk funds, has been able to not only bring the research community together, but also share the “state of the art” findings through videos online so that all who are interested in learning more can both view and hear the latest.
iPads for Apraxia Project
The iPads for Apraxia started as a pilot project in 2011 to investigate the uses of iPad applications for a population of children with a primary diagnosis of apraxia of speech. We wondered and asked how the iPad technology might benefit children with apraxia of speech. With funding generated by the Walk for Children with Apraxia of Speech events, CASANA’s Board of Directors authorized the pilot project in which we gave 40 iPads, protective cases, extended warranties, “apps” and training to children with apraxia of speech in the United States and Canada. The board, however, wanted data at the end about if or how the iPads had been useful and in what ways. Dr. Heather Rusiewicz from Duquesne University is reporting about the results from pre and post surveys submitted from parents and speech-language pathologists, however, early preliminary data from 2011 suggests beneficial effects in a number of different ways. CASANA has used funds to purchase over 500 iPads and protective cases for use by children with severe apraxia from moderate to low income families since the beginning of the program.
We would also like to thank the Silent Stars Foundation for once again contributing and partnering on this program!
Therapy Grants for Children
The extensive need of children with apraxia of speech often creates very real and heavy financial obligations on the part of families. Through a new program, CASANA has provided funds to a nonprofit partner in order to specifically and exclusively assist families with limited financial resources to apply for and receive small grants to help defray and offset some of the expense of speech therapy programs for their child with apraxia.
Training for current and future SLPs and parents too!
It’s all about treatment!! Most who graduate from a Master’s program in Speech-Language Pathology have had minimal, if any, exposure to childhood apraxia of speech, its assessment, or its treatment. This is part of an insidious problem which leads to unprepared professionals. Walk funds are being used to create more opportunities for students and practicing SLPS so that our children with apraxia receive the best possible speech therapy treatment. A project that launched in the summer of 2011, funded through dollars raised from the Walk for Children with Apraxia® event, is the Childhood Apraxia of Speech Intensive Training Institute. Through this Apraxia “bootcamp” like professional training, CASANA is helping to grow more experts spread throughout North America. Since 2011, over sixty professionals have graduated from this one-of-a-kind professional development experience, with another class of 20 planned for 2018. Additionally, Walk for Children with Apraxia of Speech event funds helped to create our new Apraxia Webinar training program which continues to expand including an “on-demand” webinar library. Over 1000 hours of advanced training is being provided!
National Conference Scholarships
CASANA will be using walk funds to give scholarships for some parents and students to attend the 2017 National Conference on Childhood Apraxia of Speech.